Shot of NOAH’s president, Mike McGowan, being interviewed for Voice of
America, in DC!

Originally uploaded by Positive Exposure

Positive Exposure has published periodic updates about the attacks on people with albinism in Tanzania. Things seemed to be getting better in recent months with the sentencing of some of the killers and a halt in reported incidents. Now we are sorry to report that Reuters has reported the death of a ten year old boy, attacked in front of his family.

“The family had previously tried to have their boy registered at a school where many albinos shelter but he was refused entry because it was full. His murder at the end of October marked an end of a three-month lull in the killings.

“When he was born I thought what kind of child is this, but then he turned out to be fine and happy,” said [mother] Mwakami Kilijiwa…”

Read the rest of the article here, though beware that it is shocking.

See NOAH’s Stop Albino Slaughter site for advocacy tools that can help raise awareness about these tragedies.

Originally uploaded by Positive Exposure

With the awesome Sam & Ally and their mom! Fantastic conference! This
trip has been pretty crazy! Med student lecture @ U of MN, then nurses
@ children’s Hospital in philly then the FA conference! At the airport
now for a CH18 local meeting in Canada & a school lecture with Becky
and her book on bullying at school! Xxr

Originally uploaded by Positive Exposure

If you haven’t already received it, view the latest edition of the Positive Exposure newsletter, and then sign up now to receive future copies of  The ViewFinder: At the Frontier between Art and Genetics.

In this issue:

• Summer round up and future plans, including info about an elegant spring fundraiser to be hosted by fashion designer Ralph Rucci
• TEN new galleries from summer conferences
• Tanzania update
• Special SNEAK PREVIEW from the Positive Exposure Documentary
• National Marfan Foundation Teen Photography Contest Winner
• Two inspiring letters from the community

Don’t miss the many stunning new photographs. Check it out!

–Kim

The most amazing dinner at Corpus Christi College. Cambridge. Hosted
by Dr. Petrus de Vries!!! So Hogwarts!

Originally uploaded by Positive Exposure

Great conference, next stop Honolulu for the ASHG high school
workshop! Next blog with pics from Cambridge UK exhibit and lecture
SSBP!

Originally uploaded by Positive Exposure

Read a description of tonight’s episode.

ABC also has a lot of great resources posted on the web.

Overcoming the Social Stigma of Albinism – a 10-year-old African American twin with albinism

Fighting the Stigma of Albinism – Stereotypes Prompt a New Push to Empower People Traditionally Known as Albinos – Interview with Rick

There are also videos featuring a stand-up comic with albinism and more.

ABC kindly listed Positive Exposure on their How to Help Tanzanians with Albinism page.

So tune in tonight!

We just found out about a great opportunity to get some exercise and promote awareness for children with craniofacial conditions.

If you’re in the NYC area, join Forward Face and the National Foundation for Facial Reconstruction in a 2-mile walk to fund educational outreach, including school programs across the country.

Even if you can’t make it to the walk, you can still support people with craniofacial difference by donating to those who are walking.

For more information, including directions, see http://www.firstgiving.com/forwardface.

Lecture scheduled for Saturday 9/12 @8:40, Dermatology O’Leary
Symposium. Cool!

Originally uploaded by Positive Exposure