Originally uploaded by Positive Exposure
At the freidrichs Ataxia conference in Philly!
November 14, 2009
With the awesome Sam & Ally and their mom! Fantastic conference! This
trip has been pretty crazy! Med student lecture @ U of MN, then nurses
@ children’s Hospital in philly then the FA conference! At the airport
now for a CH18 local meeting in Canada & a school lecture with Becky
and her book on bullying at school! Xxr
Originally uploaded by Positive Exposure
New Issue of Positive Exposure Newsletter
November 12, 2009
If you haven’t already received it, view the latest edition of the Positive Exposure newsletter, and then sign up now to receive future copies of The ViewFinder: At the Frontier between Art and Genetics.
In this issue:
- Summer round up and future plans, including info about an elegant spring fundraiser to be hosted by fashion designer Ralph Rucci
- TEN new galleries from summer conferences
- Tanzania update
- Special SNEAK PREVIEW from the Positive Exposure Documentary
- National Marfan Foundation Teen Photography Contest Winner
- Two inspiring letters from the community
Don’t miss the many stunning new photographs. Check it out!
–Kim
Cambridge, UK
October 19, 2009
The most amazing dinner at Corpus Christi College. Cambridge. Hosted
by Dr. Petrus de Vries!!! So Hogwarts!
Originally uploaded by Positive Exposure
Heading to LA from the ISONG conference in San Diego!
October 19, 2009
Great conference, next stop Honolulu for the ASHG high school
workshop! Next blog with pics from Cambridge UK exhibit and lecture
SSBP!
Originally uploaded by Positive Exposure
Watch 20/20 Special on Albinism and Tanzania – Tonight 10pm ET
October 2, 2009
Read a description of tonight’s episode.
ABC also has a lot of great resources posted on the web.
Overcoming the Social Stigma of Albinism – a 10-year-old African American twin with albinism
Fighting the Stigma of Albinism – Stereotypes Prompt a New Push to Empower People Traditionally Known as Albinos – Interview with Rick
There are also videos featuring a stand-up comic with albinism and more.
ABC kindly listed Positive Exposure on their How to Help Tanzanians with Albinism page.
So tune in tonight!
NYC Walk for Kids with Craniofacial Difference, Oct. 18
September 11, 2009We just found out about a great opportunity to get some exercise and promote awareness for children with craniofacial conditions.
If you’re in the NYC area, join Forward Face and the National Foundation for Facial Reconstruction in a 2-mile walk to fund educational outreach, including school programs across the country.
Even if you can’t make it to the walk, you can still support people with craniofacial difference by donating to those who are walking.
For more information, including directions, see http://www.firstgiving.com/forwardface.
Mayo Clinic exhibit, 9/11/09
September 11, 2009
Lecture scheduled for Saturday 9/12 @8:40, Dermatology O’Leary
Symposium. Cool!
Originally uploaded by Positive Exposure
Tanzanian Trials of Accused Killers…A Sincere Effort?
August 13, 2009PE partner Under the Same Sun has posted some recent news articles mentioning founder Peter Ash’s efforts to keep the international spotlight trained on the justice process in Tanzania.
One of the articles, from Canada’s National Post, has this quote from BBC journalist Vicky Ntetema, who questions whether the entire investigation into the killings of people with albinism was ever undertaken in good faith:
“In Tanzania, there have been no convictions despite a string of arrests that included several police officers.
Local journalist Vicky Ntetema said many Tanzanians believe this is because the witch doctors are protected by members of the government and police.
‘This is the general feeling,’ she said. ‘The public is saying if you started the trial, it means you knew you had sufficient funds to complete the whole trial.’”
Mr. Ash and his organization are working tirelessly to keep the atrocities in the headlines, rather than slipping into yesterday’s news. Sign the petition and check out their site for many more articles and videos about the injustices being suffered by people with albinism in the area.
THE NATIONAL POST interviews PETER ASH about Tanzanian Courts’ decision to end trials of murderers of people with albinism due to “lack of funds”.
Read article
News agency REUTERS cites PETER ASH’S response re: Tanzanian Court decision to drop cases against those charged with murders of albinos.
Read article
SALIF KEITA and PETER ASH: “Two Incredible Human Beings” –Global Diversity Post
Read article
